Sunday, February 11, 2018

Plans & Ports

Hey there, patient readers. I know I've been MIA once again for a little stretch. I'm here today to give a quick update. I've hinted before about creating a new website for my MS blog and advocacy efforts. It will be called Life of Lesion and the launch date will hopefully be soon. (Shout out to my mom for coming up with the awesome name.)

This new site will have much less of the personal pictures and stories that have been such a big part of the blog over the past few years (though there will still be a bit of that). I will be carrying over a lot of the quality content from this space from the past eight (!) years, though. It will focus more on things like the My MS Symptoms series. There will also be a few new series called Exposed Nerves and Lesion Learned, with a shout-out to my friend Heather for coming up with those names.

Until then, I just started Twitter and Instagram profiles for the MS side of my life. Please follow me there if you're so inclined. Should I start a Facebook page as well? I haven't decided yet... I know some people who are interested in my MS stuff aren't on the other social media platforms, so I might just do it. I'm planning to up my advocacy efforts this year in general and these social platforms will allow me to do this.

In the meantime, I'll share one piece of news. A few weeks ago, I got a port! The surgery was a minor one and recovery was pretty easy. I've had one Tysabri infusion so far with the port and I'm loving it! It's really nice no longer having to be stuck 5-6 times to get an IV started. It's definitely weird to have a hard foreign object under my skin, though. I have a hard time not continually touching it.

Last IV!

they gave me this little pillow to use with a seat belt

first Port infusion!

See you soon for the official launch. I'll announce it here and have a link to the new home for my MS musings. 


Anonymous said...

You are very welcome. 😁 Your mom came up with a great name for the blog-kudos to her! I am excited to see how you set it up and read more MS specific posts. Admittedly, I will miss your pictures and personal posts, but I understand and support the change. Congrats on what you have already accomplished with this blog! - H

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