Friday, February 17, 2017

This Month: February 2017, part 1

Somehow it is already halfway through another month! And I've done zero posts. :-(

Sorry, readers. I really do have some great MS posts planned. It's just finding the time to get them done.

Some MS content from others I enjoyed this month:

Correlation Between MS and Harry Potter Characters is Pure Magic [I don't think I knew that JK Rowling's mom had MS.]

Good Guy Ted Cruz Congratulated a Woman on Having Multiple Sclerosis [Obviously, I didn't "enjoy" this one. In trying to give him the benefit of the doubt, what he really meant was probably something like "good for you, fighting the good fight, and looking 'so good'" which is potentially annoying and patronizing in and of itself, but the way he said it was SO AWFUL. IT'S HIS JOB TO TALK IN PUBLIC. IN THIS CASE ABOUT HEALTHCARE WITH REAL PEOPLE. HE HAD TO KNOW THERE WOULD BE PEOPLE WITH STORIES LIKE THIS AT A TOWN HALL ON THIS ISSUE. HE SHOULD HAVE BEEN PREPARED TO HANDLE IT BETTER!!!!!!!!!!!!!]

10 Things I'd Like Help With on the Bad Days of Multiple Sclerosis

The view from here:

opera fun

I've been playing Words With Friends lately. This was a TERRIBLE letter selection!

Favorite card I've made, a punny collaboration with my sistar from The Daily Quipple.

What I think every time I see this sign at the post office.

Horn love.

Best ever pop-up valentine's card from occasional MS Muse commenter "anonymous." ;-)

Mood lighting on V-Day with my one true love in the opera pit.

That's a sunrise, you guys! Something I am only awake for a few times a year.
I thought this frost in the foreground was cool.

All the heart eyes emojis in the world!!

Horn love with friends.

Sunday, February 5, 2017

This Month: January 2017, part 2

I know that this post should technically be titled Last Month, but just roll with it. The delay is due to it being a very difficult and busy few weeks.

My grandfather passed away at age 86. I had my first ever cup of coffee with him. I will always think of him when I eat a green onion. The funeral and time with family led to reflection not just on my grandpa, but also on my grandma who died in 1996. She had a wonderful sense of humor. They are both dearly missed.

me and Grandpa in 1988

The view from here:

These pictures are chronologically out of order, but I'm not going to take the time to fix it.

Fun to connect with college friends.

When you play this spot just right, a rainbow appears!

Origami sloth Valentine's cards are selling like hotcakes in my Etsy shop.

My sister made a delicious pasta dish while she was home.
This picture tells me she could totally pursue a career as a hand model.

My sister and I played together at the funeral.
It was fun to have instruments with for this obvious photo opportunity at the airport.

Tysabri time.

Some of the cousins. It looks like my arm is REALLY long in this shot.

My 16-year-old cousin did my makeup.

We always used to do spa days together growing up, so it was fun to do face masks together again.

A piece from The Onion a few weeks ago that really made me laugh through the tears of anxiety: GOP Promises Americans Will Be Able To Keep Current Medical Conditions If Obamacare Repealed
“Whatever health problem you have right now, you will absolutely still be allowed to continue having it once Obamacare has been dismantled,” said House Speaker Paul Ryan, adding that the repeal of the landmark healthcare legislation would in no way prevent patients from maintaining their existing medical issues or even adding to their afflictions. 

Hopefully, you'll be getting the penultimate symptoms series post this week. *fingers crossed*

Sunday, January 15, 2017

This Month: January 2017, part 1

I had thought I was just going to go ahead with monthly my-life-lately-not-necessarily-about-ms posts, as opposed to the weekly ones I did last year. But then a few of my nearest and dearest have been hassling me letting me know they are missing the weekly updates. So, this is a compromise. Twice a month, you'll get a little glimpse into my life. I also hope to get out at least weekly MS-specific posts. This next week, you'll get one of the last two symptom series posts. These last two are the hardest to write, so I've been procrastinating.

The view from here:

Technically this was December 31, 2016.
Playing my horn at a wedding in a stadium!

My niece has a habit of adding items to my calendar on random dates.
This is the first thing I had on my agenda for the new year. ;-)

2017 is Year of The Rooster
Middle of the night light snow showers. 
Too cold to step out the front door to get a shot.

It just won't stop. Toooooo much snow.

Tysabri time.
2nd time ever I've gotten a private room at this infusion center. SO MUCH BETTER.

There was a 4-hour gap this time between the doc appt and the infusion. Coffee + book time!

Interstate sunset gazing.
Moon over the frozen lake.

Winter sky.

Made frittatas for the first time in a long time.

Tea in this sweet bookish mug, a gift from a friend who gets me. A riend who no
longer has a good excuse for not writing a guest post for this blog. ;-)

While drinking that cup of tea, this was my first play in a round of Words With Friends. :-)

Another too-cold-to-go-outside-for-the-shot sunset shot.

This ad on my Instagram feed cracked me up.
When I sweat, it is always with Kayla.

Discovering a big old leak in your basement just before midnight is always fun.
Quasi MS-related story related to the leak: As I said, this was late at night. I did not want to have to call the maintenance guy. I go out of my way to not call the maintenance guy, like I've actually fixed plumbing issues myself by buying the part and watching YouTube videos to not have to call the maintenance guy. Something like this, though, was obviously beyond my abilities. So instead of calling the maintenance guy, I texted my brother a bunch of pictures, videos, and questions. Is this dangerous? Is there any compelling reason this couldn't wait until morning? And so on. He told me, it was *probably* not dangerous, but he couldn't really tell from my pictures and videos how close the electrical wires were to the leak. He told me definitely not to touch anything, though. He said that this was pretty urgent, as it would mean a massive water bill and it could potentially damage the ceiling/floor.

In my gymnastical efforts to not call the maintenance guy (he was probably sleeping, after all) I asked my bro if I could just turn off the water and wait until morning. Yes, he said. And then he tried to explain what the shut-off valve would look like and where it might be. Only one room in the basement has any light at all, so my search involved using my phone flashlight. It did not go well. At all. I finally reached a point where I had to contact the maintenance guy but I realllllly didn't want to. My bro kept texting me annoying things like "You better be calling him now." and Even if he's sleeping." and "I know you don't want to but do it anyway." and "Call him right now or else." I wrote back, "Ha, you know me too well."

At this point, I sent the maintenance guy a text. Bro said fine, but if he doesn't answer in a few minutes, I had to call.  A few minutes passed, so bro started harassing me to make the call again. Naturally, this reignited my efforts to find the water shut-off valve. I started sending my bro pics of random things I thought might be the shut-off valve. No luck. Finally, I discovered a new valve and turned it. The water stopped. It was a sweet victory. My bro said I was off the hook for calling that night and "I guess having to call someone really motivates you." And now, finally to the MS-relevant portion of this rambling tale. Bro texted, "Save your spoons for something more important than the maintenance guy." I recognize that he makes a good point, but I doubt that will change my future avoiding-calling-the-maintenance-guy behavior. But this #spoonie loves that he said that. :-)

Saturday, December 31, 2016

This Week in My Life: Week 52 of 2016!

Wow, the end is here. I made it through 52 straight weeks of consistent posts in this series. Should I continue? I know some of the people close to me IRL like these posts, but do the rest of you like them? I haven't decided yet if I want to continue this series. Right now, I think I'm leaning towards doing a monthly version of this where I share pictures and highlight what my month has been like. I'd also like to write more MS-y posts overall. The end of my Symptoms series is coming soon!

The view from here:

Christmas Day featured an ice storm turned blizzard. Glad we weren't on the road that day!

Sloth earrings I made!

Mother Nature reminding me that not all of 2016 was crappy.

I'm sorry, what now?!
We haven't even quite hit NY's much less Valentine's Day so this is ridiculous.
(The fact that they are only selling regular Cadbury Eggs and no Caramel ones makes this even worse.)

I hope you all have a lovely NYE. I'm going to a NYE wedding where I'll be performing some lovely music.

I do plan on doing a year-in-review type post and a the-year-ahead post. I suppose I should have done the former already, but you'll probably get them both at some point during the first week of the year.

Thank you all for reading The MS Muse this year. Thanks especially to those of you who have left comments! They make me happy, so please leave more. ;-) One comment to leave right now would be to let me know if you'd like me to continue this weekly post or if you like the idea of a monthly post plus more MS-specific posts.

See you in 2017!

Saturday, December 24, 2016

This Week in My Life: Week 51 of 2016

The view from here:

Gwen making me a fancy coffee drink.

A holiday vignette at Gwen's house, including an origami wreath I made for her.

Pretty frost on a bitterly cold day.
My family celebrated Christmas a few days early this year. We met at the home of my brother, SIL, and niece Kylie. The following images show our festivities as well as the scenes from the trip there and back home.

A gorgeous sunset welcomed us as we arrived to our Christmas destination. 

A private piano recital by my favorite pianist.


I'm so lucky my brother is handy since we had a major car problem arise on the drive.

S-I-L gave me a fancy gel manicure.

She's a makeup artist as well as a pianist.

These two are my faves.

Kylie made a calendar for her parents. This page is the best.

Watching my favorite Christmas movie with my favorite girl snuggled on my lap. Perfection.

Playing some Emoji Uno.

Family game night!
She did my makeup, too, in a more theatrical way with some face painting.

Our favorite game and a longstanding family Christmas tradition. So much laughter.

Hoarfrost is so pretty.

A brief bit of blue skies. Blue skies plus hoarfrost = heart eyes emoji.

Most of the drive back home looked like this.

It was an emoji Christmas! My family just gets me.
Time with this girl during the holiday season is the best gift of all.

Working on some major tangles.

A very merry Christmas to all of you who read this blog. Hope your holidays are filled with health, love, and laughter.