Sunday, March 13, 2011

MS =

It's been over a month since I've posted, oopsie! I have been working on a few different posts, but they're still in the draft stage, as I have a lot to say and want to say it well. Hopefully, I'll get them done soon. In my defense, it's been an abnormally busy stretch for me.

Speaking of being busy, MS Awareness week flew right past me. Not that I usually do anything to commemorate the week, but I thought I might at least put up a Facebook status or something this year. I want to get more involved in MS activism, and I know that awareness is important. After all, I didn't really know the first thing about the disease until I was diagnosed myself.

My schedule for this last week or so really highlights for me what MS is in my life. My pre-MS self and probably most of my peers would look at my schedule for this past week and laugh at how easy, relaxing and relatively stress free the week would be. To me, however, this week was utterly exhausting and I feel like it was a monumental achievement to make it through to the end. In order to make it through, I had to carefully adjust my medication regimens and do my best to get as much sleep as I could, while avoiding many activities I would normally do in an average day. I think that to an unknown outsider, I would have successfully passed for a healthy young professional, which I suppose was my goal. Behind the scenes, though, I was doing a careful MS-choreographed dance.

I'm not going to answer the question posed by my subject line, a reference to the current MS Society campaign. That would require a less fuzzy brain. So, this is not my "official" answer, but for me one thing that MS equals is a choreographer. It determines the dance, but I'm still the dancer. And you better believe I'm going to stretch to the limits of creativity and artistry within the confines my choreographer sets!

(OK, actually that's not too bad. I kind of like it. Good work, fuzzy brain!)


Jodi said...

Thanks for stopping by my blog. I look forward to reading more of yours!

CSA said...

Great post! I recently posted what MS = to me. Check it out at